Stigmatisation chez les parents d’enfants autistes: une revue de la littérature

Aperçu: G.M.

OBJECTIF:
Cette revue de littérature a pour objectif de résumer les conclusions actuelles d'études examinant les les expériences de stigmatisation chez les parents d'enfants autistes.
MÉTHODE:
Une recherche systématique dans la littérature a été réalisée pour identifier les études pertinentes. Deux examinateurs ont indépendamment sélectionné chaque étude en fonction des critères de sélection. Les divergences ont été résolues par des discussions. Les articles inclus ont été classés par contexte socioculturel.
RÉSULTAT:
25 études ont été identifiées et incluses dans la revue, dont 15 études qualitatives, 8 quantitatives et 2 méthodes mixtes. En fait, les parents sont victimes de stigmatisation de courtoisie qui se transforment ensuite en stigmatisation d’affiliation. L'étude de la stigmatisation n'a pas reçu suffisamment d'attention pour les parents d'enfants autistes. Il manquait d'importantes études sur la prévalence et des études longitudinales sur la stigmatisation chez les parents d'enfants autistes.
CONCLUSION:
Les parents d’enfants autistes ont perçu et subi une stigmatisation et diverses conséquences, qui variaient selon les comportements de l’autisme et la gravité des symptômes. Des études complémentaires devraient être axées sur la mise au point d’interventions permettant d’éliminer la stigmatisation chez les parents d’enfants autistes

Asian J Psychiatr. 2019 Sep 7;45:88-94. doi: 10.1016/j.ajp.2019.09.007.

Stigma among parents of children with autism: A literature review

Liao X¹, Lei X², Li Y³.

Author information

1

The Second Xiangya Hospital, Central South University, XiangYa Nursing School of Central South University, Changsha, Hunan, China. Electronic address: liaoxiaoli@csu.edu.cn.

2

The Second Xiangya Hospital, Central South University, Changsha, Hunan, China. Electronic address: leixianyang@csu.edu.cn.

3

The Second Xiangya Hospital, Central South University, Changsha, Hunan, China. Electronic address: aminny@csu.edu.cn.

Abstract

OBJECTIVE:

This literature review aims to summarize current findings from studies examined experiences of stigma among parents of children with autism.

METHOD:

A systematic literature search was carried out to identify relevant studies. Two reviewers independently screened each records based on the selection criteria. Discrepancies were resolved through discussions. Included articles were classified by social-cultural settings.

RESULT:

25 studies were identified and included in the review, including 15 qualitative, 8 quantitative, and 2 mixed method studies. Parents do in fact experience courtesy stigma which subsequently develop into affiliate stigma. The study of stigma has not received enough attention for parents of children with autism. There lacked large prevalence studies and longitudinal studies examining stigma among parents of children with autism.

CONCLUSION:

Parents of children with autism perceived and experienced stigma and various consequences which were varied with behaviors of autism and the severity of symptoms. Further studies should focus on developing intervention that help to erase stigma among parents of children with autism.

Copyright © 2019 Elsevier B.V. All rights reserved.

PMID:31542694

DOI:10.1016/j.ajp.2019.09.007

«Les points ne se joignent pas": Comprendre les besoins de soutien des familles d'enfants sur le spectre de l'autisme

Aperçu: G.M.

Les parents interrogés ont demandé une prestation de service qui a adopté une approche relationnelle axée sur la famille - qui comprend les besoins spécifiques de toute la famille, établit une relation de travail étroite avec eux et s'assure qu'ils sont soutenus à des moments où les parents et les familles sentent qu'ils en ont le plus besoin.

Autism. 2017 Apr 1:1362361316687989. doi: 10.1177/1362361316687989. [Epub ahead of print]

'The dots just don't join up': Understanding the support needs of families of children on the autism spectrum

Galpin J¹, Barratt P¹, Ashcroft E¹, Greathead S¹, Kenny L², Pellicano E^2,3.

Author information

1

1 The Bridge School, UK.

2

2 UCL Institute of Education, University College London, UK.

3

3 School of Psychology, University of Western Australia, Australia.

Abstract

Much research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support needs from their own perspectives. In total, 139 parents of autistic children with additional intellectual disabilities and limited spoken communication, all attending an inner-city London school, participated in an initial survey examining parental wellbeing, self-efficacy and the extent to which they felt supported. Semi-structured interviews were conducted with a subgroup of parents ( n = 17), some of whom reported in the survey that they felt unsupported, in order to gain their in-depth perspectives. The results from both the survey and the interviews suggested that existing support (particularly from formal support services) was not meeting parents' needs, which ultimately made them feel isolated and alienated. Parents who were interviewed called for service provision that adopted a relational, family-centred approach - one that understands the specific needs of the whole family, builds a close working relationship with them and ensures that they are supported at times when the parents and families feel they need it most.

PMID: 28449587

DOI: 10.1177/1362361316687989