Affichage des articles dont le libellé est adolescence. Afficher tous les articles
Affichage des articles dont le libellé est adolescence. Afficher tous les articles

24 mai 2021

Caractéristiques cliniques et individuelles associées au stress maternel chez les jeunes adolescents avec un diagnostic de "trouble du spectre de l'autisme"

Aperçu: G.M.

Les parents de personnes avec un diagnostic de "trouble du spectre de l'autismeé vivent à la fois des événements stressants négatifs et positifs. Plusieurs caractéristiques cliniques et sociodémographiques des enfants autistes ont été associées au stress parental dans leur famille. Cependant, peu d'études se sont concentrées sur les adolescents et le rôle de la déficience cognitive a rarement été abordé.
L'objectif principal de la présente recherche est d'explorer les associations entre les symptômes de l'autisme, les troubles cognitifs, les problèmes émotionnels et comportementaux, les caractéristiques sociodémographiques et le stress maternel chez un échantillon de jeunes adolescents avec un
diagnostic de "trouble du spectre de l'autisme" avec et sans troubles cognitifs.
La déficience cognitive et les problèmes émotionnels et comportementaux sont associés au stress maternel, tandis que les symptômes de l'autisme semblent jouer un rôle mineur.
L'éducation et la profession de la mère ne sont associées au stress maternel que dans le groupe ayant une déficience cognitive, tandis que l'âge maternel est associé au stress dans le groupe d'adolescentes sans déficience cognitive. 

Les implications liées à l'âge pour l'intervention et les orientations futures de la recherche sont discutées.

. 2021 May 20.  doi: 10.1002/aur.2539. 

Clinical and individual features associated with maternal stress in young adolescents with autism spectrum disorder

Affiliations

Abstract

Parents of people with autism spectrum disorder experience both negative stressful and positive events. Several clinical and socio-demographic features of children on the autism spectrum have been associated with parenting stress in their families. However, there have been few studies that focus on adolescents and the role of cognitive impairment has rarely been addressed. The main aim of the present research is to explore associations between autism symptoms, cognitive impairment, emotional and behavioral problems, socio-demographic features, and maternal stress in a sample of young adolescents with Autism Spectrum Disorder with and without cognitive impairment. Cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Maternal education and occupation are only associated with maternal stress in the group with cognitive impairment, while maternal age is stress-associated in the group of adolescents without cognitive impairment. Age-related implications for intervention and future research directions are discussed. LAY SUMMARY: Parents of individuals on the autism spectrum are exposed to both negative stressful and enriching experiences during their parenthood. While the influence of several child characteristics and socio-demographic features on parental stress during childhood has been widely explored in past studies, studies on teenagers are limited. The aim of the present research is to explore the influence of several characteristics on maternal stress levels in families with teenagers on the autism spectrum. We found that cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Socio-demographic features are not associated with maternal stress. Broadly speaking, the subjective perception of parental distress in both groups is less related to teenagers' characteristics then the perception of having a difficult interaction with the teenagers. We divided our participants into two groups (one group with cognitive impairment and the other group without). We found that mothers of teenagers with cognitive impairment are generally more stressed compared to the other group. Furthermore, we confirm that emotional and behavioral problems seem to play a major role in maternal stress (especially in the group without cognitive impairment), while autism symptoms seem to play a minor role. Furthermore, we found that maternal education/occupation and maternal age are associated with maternal stress in the group with and the group without cognitive impairment respectively. This research highlights the association between several variables and stress in mothers of adolescents on the spectrum. Results are discussed in the framework of previous findings highlighting the lack of adequate care and support services for families, especially for those of adolescents on the spectrum with cognitive impairment.

Keywords: adolescence; autism symptoms; cognitive; emotional and behavioral problems; maternal stress; parent mediated therapy; socio-demographic features.

References

REFERENCES

    1. Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G., & Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American journal of mental retardation: AJMR, 109(3), 237-254. https://doi.org/10.1352/0895-8017(2004)109<237:PWACIM>2.0.CO;2
    1. Abidin, R. R. (1995). Parenting stress index (3rd ed.): Professional manual. Psychological Assessment Resources.
    1. Achenbach, T. M., & Ruffle, T. M. (2000). The child behavior checklist and related forms for assessing behavioral/emotional problems and competencies. Pediatrics in Review, 21(8), 265-271. https://doi.org/10.1542/pir.21-8-265
    1. American Psychiatric Association. (2000). Diagnostic criteria from DSM-IV-tr. American Psychiatric Pub.
    1. American Psychiatric Association (Ed.). (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Association.
    1. Bader, S. H., & Barry, T. D. (2014). A longitudinal examination of the relation between parental expressed emotion and externalizing behaviors in children and adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(11), 2820-2831. https://doi.org/10.1007/s10803-014-2142-6
    1. Ballan, M. S., & Freyer, M. B. (2017). Autism spectrum disorder, adolescence, and sexuality education: Suggested interventions for mental health professionals. Sexuality and Disability, 35(2), 261-273. https://doi.org/10.1007/s11195-017-9477-9
    1. Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2018). Parenting stress through the Lens of different clinical groups: A Systematic Review & Meta-Analysis. Journal of Abnormal Child Psychology, 46(3), 449-461. https://doi.org/10.1007/s10802-017-0313-6
    1. Bauminger, N., Solomon, M., & Rogers, S. J. (2010). Externalizing and internalizing behaviors in ASD. Autism research: Official Journal of the International Society for Autism Research, 3(3), 101-112. https://doi.org/10.1002/aur.131
    1. Bearss, K., Johnson, C., Smith, T., Lecavalier, L., Swiezy, N., Aman, M., McAdam, D., Butter, E., Stillitano, C., Minshawi, N., Sukhodolsky, D. G., Mruzek, D. W., Turner, K., Neal, T., Hallett, V., Mullick, J. A., Green, B., Handen, B., Deng, Y., … Scahill, L. (2015). Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: A randomized clinical trial. JAMA, 313(15), 1524-1533. https://doi.org/10.1001/jama.2015.3150
    1. Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36(5), 685-695. https://doi.org/10.1007/s10803-006-0112-3
    1. Bishop, S. L., Richler, J., & Lord, C. (2006). Association between restricted and repetitive behaviors and nonverbal IQ in children with autism spectrum disorders. Child Neuropsychology, 12(4-5), 247-267.
    1. Brei, N. G., Schwarz, G. N., & Klein-Tasman, B. P. (2015). Predictors of parenting stress in children referred for an autism spectrum disorder diagnostic evaluation. Journal of Developmental and Physical Disabilities, 27(5), 617-635. https://doi.org/10.1007/s10882-015-9439-z
    1. Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders: Social support, mental health status and satisfaction with services. Autism: the International Journal of Research and Practice, 8(4), 409-423. https://doi.org/10.1177/1362361304047224
    1. Conner, C. M., & White, S. W. (2014). Stress in mothers of children with autism: Trait mindfulness as a protective factor. Research in Autism Spectrum Disorders, 8(6), 617-624.
    1. Copeland, S. R., & Hughes, C. (2000). Acquisition of a picture prompt strategy to increase independent performance. Education and Training in Mental Retardation and Developmental Disabilities, 35, 294-305.
    1. Craig, F., Operto, F. F., De Giacomo, A., Margari, L., Frolli, A., Conson, M., Ivagnes, S., Monaco, M., & Margari, F. (2016). Parenting stress among parents of children with neurodevelopmental disorders. Psychiatry Research, 242, 121-129. https://doi.org/10.1016/j.psychres.2016.05.016
    1. Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research: JIDR, 54(3), 266-280. https://doi.org/10.1111/j.1365-2788.2010.01258.x
    1. Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291. https://doi.org/10.1007/s10803-007-0512-z
    1. Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., Donaldson, A., & Varley, J. (2010). Randomized, controlled trial of an intervention for toddlers with autism: The early start Denver model. Pediatrics, 125(1), e17-e23. https://doi.org/10.1542/peds.2009-0958
    1. Deater-Deckard, K. (1998). Parenting stress and child adjustment: Some old hypotheses and new questions. Clinical Psychology: Science and Practice, 5(3), 314-332. https://doi.org/10.1111/j.1468-2850.1998.tb00152.x
    1. Esbensen, A. J., Seltzer, M. M., Lam, K. S., & Bodfish, J. W. (2009). Age-related differences in restricted repetitive behaviors in autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(1), 57-66. https://doi.org/10.1007/s10803-008-0599-x
    1. Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism: the International Journal of Research and Practice, 13(4), 375-387 https://doi.org/10.1177/1362361309105658
    1. Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185-3203. https://doi.org/10.1007/s10803-014-2189-4
    1. Georgiades, S., & Kasari, C. (2018). Reframing optimal outcomes in autism. JAMA Pediatrics, 172(8), 716-717.
    1. Giovagnoli, G., Postorino, V., Fatta, L. M., Sanges, V., De Peppo, L., Vassena, L., Rose, P. D., Vicari, S., & Mazzone, L. (2015). Behavioral and emotional profile and parental stress in preschool children with autism spectrum disorder. Research in Developmental Disabilities, 45-46, 411-421. https://doi.org/10.1016/j.ridd.2015.08.006
    1. Goedeke, S., Shepherd, D., Landon, J., & Taylor, S. (2019). How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism. Research in Autism Spectrum Disorders, 60, 36-47.
    1. Gotham, K., Risi, S., Pickles, A., & Lord, C. (2007). The autism diagnostic observation schedule: Revised algorithms for improved diagnostic validity. Journal of Autism and Developmental Disorders, 37(4), 613-627. https://doi.org/10.1007/s10803-006-0280-1
    1. Green, J., Charman, T., Mc Conachie, H., Aldred, C., Slonims, V., Howlin, P., Le Couteur, A., Leadbitter, K., Hudry, K., Byford, S., Barrett, B., Temple, K., Macdonald, W., Pickles, A., & PACT Consortium. (2010). Parent-mediated communication-focused treatment in children with autism (PACT): A randomised controlled trial. Lancet (London, England), 375(9732), 2152-2160. https://doi.org/10.1016/S0140-6736(10)60587-9
    1. Guerrera, S., Menghini, D., Napoli, E., Di Vara, S., Valeri, G., & Vicari, S. (2019). Assessment of psychopathological comorbidities in children and adolescents with autism Spectrum disorder using the child behavior checklist. Frontiers in Psychiatry, 10, 535. https://doi.org/10.3389/fpsyt.2019.00535
    1. Hall, H. R., & Graff, J. C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping. Issues in Comprehensive Pediatric Nursing, 34(1), 4-25. https://doi.org/10.3109/01460862.2011.555270
    1. Hastings, R. P., & Johnson, E. (2001). Stress in UKfamilies conducting intensive home-based behavioral intervention for their young child with autism. Journal of Autism and Developmental Disorders, 31(3), 327-336. https://doi.org/10.1023/a:1010799320795
    1. Hastings, R. P., Kovshoff, H., Ward, N. J., Degli Espinosa, F., Brown, T., & Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635-644. https://doi.org/10.1007/s10803-005-0007-8
    1. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629-642. https://doi.org/10.1007/s10803-012-1604-y
    1. Hodgetts, S., McConnell, D., Zwaigenbaum, L., & Nicholas, D. (2017). The impact of autism services on mothers' psychological wellbeing. Child: Care, Health and Development, 43(1), 18-30. https://doi.org/10.1111/cch.12398
    1. Huang, C. Y., Yen, H. C., Tseng, M. H., Tung, L. C., Chen, Y. D., & Chen, K. L. (2014). Impacts of autistic behaviors, emotional and behavioral problems on parenting stress in caregivers of children with autism. Journal of Autism and Developmental Disorders, 44(6), 1383-1390. https://doi.org/10.1007/s10803-013-2000-y
    1. Hume, K., Boyd, B. A., Hamm, J. V., & Kucharczyk, S. (2014). Supporting independence in adolescents on the autism spectrum. Remedial and Special Education, 35(2), 102-113.
    1. Hume, K., Loftin, R., & Lantz, J. (2009). Increasing independence in autism spectrum disorders: A review of three focused interventions. Journal of Autism and Developmental Disorders, 39(9), 1329-1338.
    1. Hus, V., Gotham, K., & Lord, C. (2014). Standardizing ADOS domain scores: Separating severity of social affect and restricted and repetitive behaviors. Journal of Autism and Developmental Disorders, 44(10), 2400-2412. https://doi.org/10.1007/s10803-012-1719-1
    1. Hus, V., & Lord, C. (2014). The autism diagnostic observation schedule, module 4: Revised algorithm and standardized severity scores. Journal of Autism and Developmental Disorders, 44(8), 1996-2012. https://doi.org/10.1007/s10803-014-2080-3
    1. Ingersoll, B., & Hambrick, D. Z. (2011). The relationship between the broader autism phenotype, child severity, and stress and depression in parents of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5(1), 337-344. https://doi.org/10.1016/j.rasd.2010.04.017
    1. Karst, J. S., Van Hecke, A. V., Carson, A. M., Stevens, S., Schohl, K., & Dolan, B. (2015). Parent and family outcomes of PEERS: A social skills intervention for adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(3), 752-765. https://doi.org/10.1007/s10803-014-2231-6
    1. Kayfitz, A. D., Gragg, M. N., & Robert Orr, R. (2010). Positive experiences of mothers and fathers of children with autism. Journal of Applied Research in Intellectual Disabilities, 23(4), 337-343. https://doi.org/10.1111/j.1468-3148.2009.00539.x
    1. Koegel, R. L., Schreibman, L., Loos, L. M., Dirlich-Wilhelm, H., Dunlap, G., Robbins, F. R., & Plienis, A. J. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22(2), 205-216. https://doi.org/10.1007/BF01058151
    1. Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research: JIDR, 50(Pt 3), 172-183. https://doi.org/10.1111/j.1365-2788.2005.00732.x
    1. Lopez B & Keenan L (2014). Barriers to employment in autism: Future challenges to implementing the adult autism strategy. Autism Research Network, 1-17. http:// www.port.ac.uk/media/contacts-and-departments/psychology/ace/Barriers-to...
    1. Lord, C., Brugha, T. S., Charman, T., Cusack, J., Dumas, G., Frazier, T., Jones, E., Jones, R. M., Pickles, A., State, M. W., Taylor, J. L., & Veenstra-VanderWeele, J. (2020). Autism spectrum disorder. Nature Reviews. Disease Primers, 6(1), 5. https://doi.org/10.1038/s41572-019-0138-4
    1. Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Jr., Leventhal, B. L., DiLavore, P. C., Pickles, A., & Rutter, M. (2000). The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30(3), 205-223.
    1. Lord, C., Rutter, M., DiLavore, P., Risi, S., Gotham, K., & Bishop, S. L. (2012). Autism diagnostic observation schedule (ADOS-2): Manual (2nd ed.). Western Psychological Services.
    1. Manning, M. M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41(3), 320-331. https://doi.org/10.1007/s10803-010-1056-1
    1. McDonald, T. A., & Machalicek, W. (2013). Systematic review of intervention research with adolescents with autism spectrum disorders. Research in Autism Spectrum Disorders, 7(11), 1439-1460.
    1. McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2014). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism: the International Journal of Research and Practice, 18(5), 502-510. https://doi.org/10.1177/1362361313485163
    1. Militerni, R., Bravaccio, C., Falco, C., Fico, C., & Palermo, M. T. (2002). Repetitive behaviors in autistic disorder. European Child & Adolescent Psychiatry, 11(5), 210-218.
    1. Miranda, A., Mira, A., Berenguer, C., Rosello, B., & Baixauli, I. (2019). Parenting stress in mothers of children with autism without intellectual disability: Mediation of behavioral problems and coping strategies. Frontiers in Psychology, 10, 464. https://doi.org/10.3389/fpsyg.2019.00464
    1. Orsmond, G. I., & Kuo, H. Y. (2011). The daily lives of adolescents with an autism spectrum disorder: Discretionary time use and activity partners. Autism: the International Journal of Research and Practice, 15(5), 579-599. https://doi.org/10.1177/1362361310386503
    1. Osborne, L. A., McHugh, L., Saunders, J., & Reed, P. (2008). Parenting stress reduces the effectiveness of early teaching interventions for autistic spectrum disorders. Journal of Autism and Developmental Disorders, 38(6), 1092-1103. https://doi.org/10.1007/s10803-007-0497-7
    1. Pastor-Cerezuela, G., Fernández-Andrés, M. I., Tárraga-Mínguez, R., & Navarro-Peña, J. M. (2016). Parental stress and ASD: Relationship with autism symptom severity, IQ, and resilience. Focus on Autism and Other Developmental Disabilities, 31(4), 300-311. https://doi.org/10.1177/1088357615583471
    1. Picardi, A., Gigantesco, A., Tarolla, E., Stoppioni, V., Cerbo, R., Cremonte, M., Alessandri, G., Lega, I., & Nardocci, F. (2018). Parental burden and its correlates in families of children with autism spectrum disorder: A multicentre study with two comparison groups. Clinical Practice and Epidemiology in Mental Health: CP & EMH, 14, 143-176. https://doi.org/10.2174/1745017901814010143
    1. Pozo, P., Sarriá, E., & Brioso, A. (2014). Family quality of life and psychological well-being in parents of children with autism spectrum disorders: A double ABCX model. Journal of Intellectual Disability Research: JIDR, 58(5), 442-458. https://doi.org/10.1111/jir.12042
    1. Pugliese, C. E., Anthony, L., Strang, J. F., Dudley, K., Wallace, G. L., & Kenworthy, L. (2015). Increasing adaptive behavior skill deficits from childhood to adolescence in autism spectrum disorder: Role of executive function. Journal of Autism and Developmental Disorders, 45(6), 1579-1587.https\\doi.orghttps://doi.org/10.1007/s10803-014-2309-1
    1. Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437-451. https://doi.org/10.1177/0145445509336427
    1. Raven, J., & Raven, J. (2003). Raven progressive matrices. In R. S. McCallum (Ed.), Handbook of nonverbal assessment (pp. 223-237). Kluwer Academic/Plenum. https://doi.org/10.1007/978-1-4615-0153-4_11
    1. Robbins, F. R., Dunlap, G., & Plienis, A. J. (1991). Family characteristics, family training, and the progress of young children with autism. Journal of Early Intervention, 15(2), 173-184. https://doi.org/10.1177/105381519101500206
    1. Roid, G. H., & Miller, L. J. (1997). Leiter international performance scale-revised (Leiter-R). Stoelting.
    1. Roid, G. H., Miller, L. J., Pomplun, M., & Koch, C. (2013). Leiter international performance scale (3rd ed.). Stoelting Company.
    1. Rutter, M., Bailey, A., & Lord, C. (2003). Manual for the social communication questionnaire. Western Psychological Services.
    1. Rutter, M., LeCouteur, A., & Lord, C. (2003). Autism diagnostic interview-revised. Western Psychological Services.
    1. Salazar, F., Baird, G., Chandler, S., Tseng, E., O'sullivan, T., Howlin, P., Pickles, A., & Simonoff, E. (2015). Co-occurring psychiatric disorders in preschool and elementary school-aged children with autism Spectrum disorder. Journal of Autism and Developmental Disorders, 45(8), 2283-2294. https://doi.org/10.1007/s10803-015-2361-5
    1. Schieve, L. A., Blumberg, S. J., Rice, C., Visser, S. N., & Boyle, C. (2007). The relationship between autism and parenting stress. Pediatrics, 119(Suppl 1), S114-S121. https://doi.org/10.1542/peds.2006-2089Q
    1. Schutte, C., Richardson, W., Devlin, M., Hill, J., Ghossainy, M., & Hewitson, L. (2018). The relationship between social affect and restricted and repetitive behaviors measured on the ADOS-2 and maternal stress. Journal of Autism and Developmental Disorders, 48(3), 751-758. https://doi.org/10.1007/s10803-017-3453-1
    1. Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Bolt, D., Kring, S., Lounds, J., & Lord, C. (2007). Change in autism symptoms and maladaptive behaviors in adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 37(9), 1735-1747.
    1. Singh, N. N., Lancioni, G. E., Karazsia, B. T., Myers, R. E., Hwang, Y. S., & Anālayo, B. (2019). Effects of mindfulness-based positive behavior support (MBPBS) training are equally beneficial for mothers and their children with autism Spectrum disorder or with intellectual disabilities. Frontiers in Psychology, 10, 385. https://doi.org/10.3389/fpsyg.2019.00385
    1. Valeri, G., Casula, L., Menghini, D., Amendola, F. A., Napoli, E., Pasqualetti, P., & Vicari, S. (2020). Cooperative parent-mediated therapy for Italian preschool children with autism spectrum disorder: A randomized controlled trial. European Child & Adolescent Psychiatry, 29(7), 935-946. https://doi.org/10.1007/s00787-019-01395-5
    1. Van Der Kaap-Deeder, J., Soenens, B., Mabbe, E., Dieleman, L., Mouratidis, A., Campbell, R., & Vansteenkiste, M. (2019). From daily need experiences to autonomy-supportive and psychologically controlling parenting via psychological availability and stress. Parenting, 19(3), 177-202.
    1. Wechsler, D. (2003). Wechsler intelligence scale for children-fourth edition (WISC-IV). The Psychological Corporation.
    1. Wei, X., Wagner, M., Hudson, L., Yu, J. W., & Shattuck, P. (2015). Transition to adulthood: Employment, education, and disengagement in individuals with autism spectrum disorders. Emerging Adulthood, 3(1), 37-45.
    1. Yorke, I., White, P., Weston, A., Rafla, M., Charman, T., & Simonoff, E. (2018). The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: A systematic review and meta-analysis. Journal of Autism and Developmental Disorders, 48(10), 3393-3415.
    1. Zaidman-Zait, A., Mirenda, P., Zumbo, B. D., Wellington, S., Dua, V., & Kalynchuk, K. (2010). An item response theory analysis of the parenting stress index-short form with parents of children with autism spectrum disorders. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 51(11), 1269-1277. https://doi.org/10.1111/j.1469-7610.2010.02266.x

28 août 2019

Mesure du développement de la puberté chez les enfants avec et sans "trouble du spectre de l'autisme" : comparaison entre l'examen physique, le rapport parental et l'autodéclaration

Aperçu: G.M.
L'adolescence est une période de changement biopsychosocial remarquable, qui peut être particulièrement difficile pour les jeunes avec un diagnostic de "trouble du spectre de l'autisme" (TSA), nécessitant une meilleure compréhension et une évaluation précise de la maturation de la puberté. 
L'étude a comparé l'examen physique aux mesures des parents et à l'auto-évaluation de 200 participants (134 hommes et 66 femmes) âgés de 10,0 à 13 ans et demi. Les participants présentant un développement typique (TD, n = 78) et un TSA (n = 122) ont été tous deux inclus. 
La concordance variait de légère à moyenne pour les auto-évaluations (κ = 0,17 à 0,32) et de légère à modérée pour les déclarations des parents (κ = 0,21 à 0,44). 
La concordance entre l’examen physique et les rapports autodéterminés et auto-déclarés du groupe TSA était quelque peu inférieure à celle du groupe TD. 
Les résultats indiquent que les évaluations de la puberté par les parents ou les enfants ne sont pas des indices fiables d'un échafaudage pubertaire précise.

2019 Aug 26. doi: 10.1007/s10803-019-04192-w.

Pubertal Development Measurement in Children With and Without Autism Spectrum Disorder: A Comparison Between Physical Exam, Parent- and Self-Report

Author information

1
Department of Psychiatry and Behavioral Sciences, Vanderbilt University Medical Center, Nashville, TN, USA. blythe.corbett@vanderbilt.edu.
2
Vanderbilt Kennedy Center, Vanderbilt University Medical Center, PMB 40, 230 Appleton Place, Nashville, TN, 37203, USA. blythe.corbett@vanderbilt.edu.
3
Vanderbilt Brain Institute, Vanderbilt University, Nashville, TN, USA.
4
Department of Psychiatry and Behavioral Sciences, Vanderbilt University Medical Center, Nashville, TN, USA.

Abstract

Adolescence is a time of remarkable biopsychosocial change, which may be particularly challenging for youth with autism spectrum disorder (ASD), necessitating enhanced understanding and accurate assessment of pubertal maturation. The study compared physical examination to parent- and self-report measures in 200 participants (134 males and 66 females) ages 10.0-13.5 years. Both participants with typical development (TD, n = 78) and ASD (n = 122) were included. Concordance ranged from slight-to-fair for self-assessments (κ = .17-.32) and slight-to-moderate for parent-report (κ = .21-.44). Concordance of physical exam with self- and parent-report of the ASD group was somewhat lower than for the TD group. Findings indicate pubertal assessments by parent or child are not reliable indices of precise pubertal staging.

PMID:31448383
DOI:10.1007/s10803-019-04192-w

22 août 2019

Utilisation des services, besoins non satisfaits et obstacles aux services chez les adolescents et les jeunes adultes avec un diagnostic de "trouble du spectre de l'autisme" en Pologne

Aperçu: G.M.
CONTEXTE:
Malgré le nombre croissant d'adolescents et d'adultes chez qui on a diagnostiqué un trouble du spectre de l'autisme (dTSA), on sait peu de choses sur les besoins en services et les obstacles à l'accès aux services dans cette population. Les recherches existantes montrent que les jeunes avec un dTSA sont davantage sous-desservis à l'approche des dernières années de leurs études secondaires et que les services adéquats pour les personnes avec un dTSA après le passage à l'âge adulte sont encore plus rares. Cependant, peu d'études ont directement comparé les différences de disponibilité des services entre adolescents et adultes avec un dTSA, et encore moins d'études sont publiées sur l'utilisation des services en dehors des pays anglo-saxons. La présente étude visait à examiner l'accès aux services, les obstacles perçus et les besoins non satisfaits, tels que rapportés par les parents d'adolescents et de jeunes adultes avec un dTSA en Pologne.
METHODES:
L'étude a utilisé un sous-échantillon de parents de jeunes avec un dTSA (âgés de 12 à 38 ans; N = 311) de l'enquête polonaise sur l'autisme - une enquête couvrant différents domaines du fonctionnement des personnes avec un dTSA en Pologne, sur la base d'un échantillon de commodité. Les parents qui ont répondu ont été recrutés via différents fournisseurs de services, médias sociaux et presse, et ont répondu à une enquête via une plate-forme Web ou un questionnaire sur feuille.
RÉSULTATS:
Comme prévu, les adultes ont eu moins recours aux services que les adolescents: 80,1% des adolescents et 61,1% des adultes avec un dTSA ont eu recours à des services au cours des 12 derniers mois. Les services de santé mentale figuraient parmi les services les plus utilisés et les plus nécessaires, suivis des services éducatifs, tandis que les besoins en services sensoriels / moteurs restaient en grande partie insatisfaits. Les jeunes ayant une déficience intellectuelle coexistante utilisaient plus de services que ceux qui n'en avaient pas. Les organisations non gouvernementales, les cliniques privées et les écoles étaient les fournisseurs de services les plus courants. Les parents ont indiqué que la plupart des jeunes avec un dTSA avaient des besoins non satisfaits en matière de services (93,5%) et étaient confrontés à des obstacles pour y accéder (82,7%). Les familles à faible revenu et celles vivant en dehors des grandes villes étaient les plus exposées aux obstacles à l'accès aux services
CONCLUSIONS:
Les résultats confirment encore les maigres preuves de différents pays suggérant que les adolescents et les adultes avec un TSA étaient tous deux largement sous-desservis. Les décideurs devraient s'attaquer aux inégalités économiques, régionales et liées à l'âge en matière d'accès aux services pour les personnes avec un TSA.

2019 Aug 20;19(1):587. doi: 10.1186/s12913-019-4432-3.

Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland

Author information

1
Faculty of Psychology, University of Warsaw, Stawki 5/7, 01-909, Warsaw, Poland. mateusz.platos@gmail.com.
2
Faculty of Psychology, University of Warsaw, Stawki 5/7, 01-909, Warsaw, Poland.

Abstract

BACKGROUND:

Despite a growing number of adolescents and adults diagnosed with autism spectrum disorder (ASD), little is known about service needs and barriers to services in this population. Existing research shows that youth with ASD are more underserved as they approach final years of their high school education and that adequate services for individuals with ASD after transition to adulthood are even scarcer. However, few studies have directly compared differences in service availability between adolescents and adults with ASD, and even fewer studies are published on service use outside Anglo-Saxon countries. The purpose of the present study was to examine service access, perceived barriers, and unmet needs, as reported by parents of adolescents and young adults with ASD in Poland.

METHODS:

The study used a subsample of parents of young people with ASD (aged 12-38 years; N = 311) from the Polish Autism Survey - a survey covering different areas of functioning of people with ASD in Poland, based on a convenience sample. Responding parents were recruited via different service providers, social media, and press, and completed a survey using a web platform or a paper-and-pencil questionnaire.

RESULTS:

As expected, adults used services less often than adolescents, with 80.1% of adolescents and 61.1% of adults with ASD using services in the previous 12 months. Mental health services were among the most used and the most needed services, followed by educational services, while needs for sensory/motor services remained largely unmet. Young people with a coexisting intellectual disability used more services than those without it. Non-governmental organizations, private clinics, and schools were the most common service providers. Parents indicated that most of young people with ASD had unmet service needs for services (93.5%) and faced barriers to access them (82.7%). Low-income families and those living outside large cities were at the highest risk of facing barriers to service access.

CONCLUSIONS:

The results confirm still a thin body of evidence from different countries suggesting that adolescents and adults with ASD were both largely underserved populations. Policy-makers should address economic, regional, and age-related inequities in access to services for individuals with ASD.
PMID:31429734
DOI:10.1186/s12913-019-4432-3

17 août 2019

Facteurs de risque pour l'utilisation des services d'urgence chez les adolescents avec un diagnostic de "trouble du spectre de l'autisme"

Aperçu: G.M.
Cette étude réaffirme nos travaux antérieurs qui documentaient un nombre plus élevé de visites aux urgences d'adolescentes avec un diagnostic de "trouble du spectre de  l'autisme" (dTSA) que d'adolescents avec un dTSA, ainsi qu'un nombre considérablement plus élevé de visites aux urgences d'adolescents plus âgés que d'adolescents plus jeunes. Des comorbidités psychiatriques combinées d'extériorisation et d'intériorisation, ainsi que des conditions d'intériorisation, permettent à elles seules de prédire un nombre plus élevé de visites aux urgences dans cette étude. 
La gravité du trouble, telle que démontrée par les habitudes de visites chez le médecin de premier recours, les références psychiatriques effectuées avant les visites aux urgences et la prescription d'au moins deux classes de médicaments psychotropes prédisent également un nombre plus élevé de visites aux urgences . 
Enfin, comme prévu, les visites précédentes au service des urgences prédisent les visites futures. 
L'identification de ces facteurs peut s'avérer utile pour déterminer l'adéquation des supports et des ressources actuels destinés aux adolescents avec un TSA qui affrontent les défis de l'adolescence.

2019 Aug 14. doi: 10.1007/s10803-019-04166-y.

Risk Factors for Emergency Department Utilization Among Adolescents with Autism Spectrum Disorder

Author information

1
Department of Public Health Sciences, College of Medicine, Pennsylvania State University, 90 Hope Drive, Hershey, PA, 17033, USA. gliu@phs.psu.edu.
2
Department of Psychiatry, College of Medicine, Pennsylvania State University, 500 University Drive, Hershey, PA, 17033, USA. gliu@phs.psu.edu.
3
Department of Psychiatry, College of Medicine, Pennsylvania State University, 500 University Drive, Hershey, PA, 17033, USA.
4
Department of Public Health Sciences, College of Medicine, Pennsylvania State University, 90 Hope Drive, Hershey, PA, 17033, USA.

Abstract

This study reaffirms our previous work documenting a higher number of Emergency Department (ED) visits by adolescent females with Autism Spectrum Disorder (ASD) as compared to adolescent males with ASD, as well as significantly more ED visits by older adolescents than younger adolescents with ASD. Combined externalizing and internalizing psychiatric co-morbidities as well as internalizing conditions alone predict a higher number of ED visits in this study. Illness severity as demonstrated by patterns of visits to primary care physicians and psychiatric referrals prior to ED visits and the prescription of two or more classes of psychotropic medications also predict higher number of ED visits. Finally, as expected, previous ED visits predict future ED visits. The identification of these factors may prove helpful in determining adequacy of current supports and resources for teens with ASD navigating the challenges of adolescence.
PMID:31414259
DOI:10.1007/s10803-019-04166-y

16 août 2019

Adaptation sociale chez les adolescents nés bien avant terme: preuves d'un fondement cognitif des problèmes sociaux

Aperçu: G.M.
OBJECTIF:
Accroître la compréhension des symptômes d’adaptation sociale et des "troubles du spectre de l'autisme" chez les adolescents nés très avant terme en étudiant le rôle de la reconnaissance des émotions et des processus de contrôle cognitif dans la relation entre la naissance très prématurée et l’adaptation sociale.
CONCEPTION:
Une cohorte néerlandaise de 61 adolescents très prématurés et 61 adolescents nés à terme et âgés de 13 ans a participé. L'adaptation sociale a été évaluée par les parents, les enseignants et les adolescents et les symptômes de "troubles du spectre de l 'autisme" par les parents. La reconnaissance des émotions a été évaluée à l'aide d'une tâche informatisée comprenant des images de visages d'enfants exprimant la colère, la peur, la tristesse et le bonheur avec une intensité variable. Le contrôle cognitif a été évalué en utilisant une étendue visuospatiale, un antisaccade et une attention soutenue à la tâche de réponse. Les mesures de performance dérivées de ces tâches ont servi d'indicateurs d'un concept de contrôle cognitif latent, qui a été testé à l'aide d'une analyse factorielle de confirmation. Les analyses de médiation ont été menées avec la reconnaissance des émotions et le contrôle cognitif en tant que médiateurs de la relation entre la naissance très prématurée et les problèmes sociaux.
RÉSULTATS:
Les adolescents très prématurés présentaient davantage de problèmes sociaux évalués par les parents et les enseignants et une symptomatologie accrue des "troubles du spectre de l'autisme" que les témoins. Aucune différence dans les problèmes sociaux autodéclarés n'a été observée. De plus, les adolescents très prématurés présentaient des déficits de reconnaissance des émotions et de contrôle cognitif par rapport aux adolescents nés à terme. La relation entre la naissance très prématurée et les problèmes sociaux évalués par les parents était significativement médiée par le contrôle cognitif mais pas par la reconnaissance des émotions. 
La naissance très prématurée était associée à une augmentation de 0,67-DS des problèmes sociaux notés par les parents par son effet négatif sur le contrôle cognitif.
CONCLUSIONS:
Les présents résultats fournissent des preuves solides du rôle central du contrôle cognitif altéré dans les problèmes sociaux des adolescents nés très avant terme.

2019 Aug 8. pii: S0022-3476(19)30809-1. doi: 10.1016/j.jpeds.2019.06.045.

Social Adjustment in Adolescents Born Very Preterm: Evidence for a Cognitive Basis of Social Problems

Author information

1
Clinical Neuropsychology Section, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands. Electronic address: e.s.twilhaar@vu.nl.
2
Clinical Neuropsychology Section, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands.
3
Education and Child Studies, Clinical Neurodevelopmental Sciences, Leiden University, Leiden, the Netherlands.
4
Emma Children's Hospital, Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Pediatrics, Amsterdam, the Netherlands.
5
Emma Children's Hospital, Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Pediatrics, Amsterdam, the Netherlands; Danone Nutricia Research, Utrecht, the Netherlands.
6
Clinical Neuropsychology Section, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands; Emma Children's Hospital, Amsterdam UMC, Vrije Universiteit Amsterdam, Department of Pediatrics, Amsterdam, the Netherlands.

Abstract

OBJECTIVE:

To increase the understanding of social adjustment and autism spectrum disorder symptoms in adolescents born very preterm by studying the role of emotion recognition and cognitive control processes in the relation between very preterm birth and social adjustment.

STUDY DESIGN:

A Dutch cohort of 61 very preterm and 61 full-term adolescents aged 13 years participated. Social adjustment was rated by parents, teachers, and adolescents and autism spectrum disorder symptoms by parents. Emotion recognition was assessed with a computerized task including pictures of child faces expressing anger, fear, sadness, and happiness with varying intensity. Cognitive control was assessed using a visuospatial span, antisaccade, and sustained attention to response task. Performance measures derived from these tasks served as indicators of a latent cognitive control construct, which was tested using confirmatory factor analysis. Mediation analyses were conducted with emotion recognition and cognitive control as mediators of the relation between very preterm birth and social problems.

RESULTS:

Very preterm adolescents showed more parent- and teacher-rated social problems and increased autism spectrum disorder symptomatology than controls. No difference in self-reported social problems was observed. Moreover, very preterm adolescents showed deficits in emotion recognition and cognitive control compared with full-term adolescents. The relation between very preterm birth and parent-rated social problems was significantly mediated by cognitive control but not by emotion recognition. Very preterm birth was associated with a 0.67-SD increase in parent-rated social problems through its negative effect on cognitive control.

CONCLUSIONS:

The present findings provide strong evidence for a central role of impaired cognitive control in the social problems of adolescents born very preterm.
PMID:31402139
DOI:10.1016/j.jpeds.2019.06.045

28 juillet 2019

L’intimidation entre frères et sœurs au milieu de l’enfance est associée à des difficultés psychosociales au début de l’adolescence: le cas des personnes avec un diagnostic de TSA

Aperçu: G.M.
L’intimidation entre frères et soeurs est associée à diverses difficultés psychosociales. Nous avons étudié cela chez 231 personnes avec un diagnostic de TSA et 8180 personnes sans TSA entre le milieu de l'enfance (11 ans) et le début de l'adolescence (14 ans). 
Dans l'ensemble, l'intimidation autodéclarée par les frères et soeurs a diminué du milieu de l'enfance au début de l'adolescence. Malgré cela, les personnes avec un diagnostic de TSA ont continué à signaler davantage d'intimidation entre frères et soeurs en tant qu'auteur et victime au début de l'adolescence que celles sans TSA. 
Nous avons constaté que l'intimidation autodéclarée par les frères et soeurs au milieu de l'enfance était associée à des difficultés psychosociales au début de l'adolescence. 
De plus, les personnes avec un diagnostic de TSA étaient plus susceptibles de se faire intimider par leurs frères et sœurs et leurs pairs au milieu de l'enfance et ce type de victimisation était associé à des difficultés psychosociales concomitantes et longitudinales.

Sibling Bullying in Middle Childhood is Associated with Psychosocial Difficulties in Early Adolescence: The Case of Individuals with Autism Spectrum Disorder

Author information

1
Department of Education, Derwent College, University of York, York, YO10 5DD, UK. umar.toseeb@york.ac.uk
2
Department of Psychology, Manchester Metropolitan University, Brooks Building, 53 Bonsall Street, Manchester, M15 6GX, UK.
3
Department of Psychology, University of Warwick, Coventry, CV4 7AL, UK.

Abstract

Sibling bullying is associated with various psychosocial difficulties. We investigated this in 231 individuals with Autism Spectrum Disorder (ASD) and 8180 without ASD between middle childhood (age 11 years) and early adolescence (age 14 years). On the whole, self-reported sibling bullying decreased from middle childhood to early adolescence. Despite this, individuals with ASD continued to report more sibling bullying as both perpetrator and victim in early adolescence than those without ASD. We found that self-report sibling bullying in middle childhood was associated with psychosocial difficulties in early adolescence. Moreover, individuals with ASD were more likely to report being bullied by both siblings and peers in middle childhood and this pattern of victimisation was associated with concurrent and longitudinal psychosocial difficulties.
PMID:31332675
DOI:10.1007/s10803-019-04116-8

03 juin 2018

Essai ouvert de la thérapie cognitivo-comportementale modulaire dans le traitement de l'anxiété chez les adolescents en retard avec un diagnostic de "trouble du spectre de l'autisme"

Aperçu: G.M.
Étant donné les taux élevés d'anxiété comorbide et de "trouble du spectre de l'autisme"(TSA) chez les adolescents et les jeunes adultes, des protocoles de traitement efficaces pour traiter les symptômes d'anxiété sont importants pour favoriser une plus grande indépendance entre les contextes. Alors que la recherche soutient l'utilisation de la thérapie cognitivo-comportementale (TCC) dans les groupes d'âge plus jeunes avec un diagnostic de TSA (dTSA), la littérature est limitée sur les interventions bénéfiques aux adolescents et aux jeunes adultes souffrant de troubles anxieux comorbides et de TSA.  
Par conséquent, cet essai ouvert a utilisé un manuel de TCC modifié pour sept participants âgés de 16 à 20 ans, consistant en un traitement de TCC modularisé de 16 semaines, comprenant une psychoéducation, une thérapie cognitive et une thérapie d'exposition.  
Des mesures d'anxiété et de dépression ont été effectuées au départ et après le traitement.  
Les résultats ont démontré des réductions significatives sur les mesures d'anxiété évaluées par les cliniciens. Alors que les résultats sont encourageants, d'autres études examinant l'efficacité de la TCC pour cette population avec TSA et de l'anxiété clinique sont nécessaires pour identifier davantage les composants de traitement bénéfiques.

Child Psychiatry Hum Dev. 2018 May 31. doi: 10.1007/s10578-018-0817-5.

Open Trial of Modular Cognitive-Behavioral Therapy in the Treatment of Anxiety Among Late Adolescents with Autism Spectrum Disorder

Author information

1
Johns Hopkins All Children's Hospital, St. Petersburg, FL, USA.
2
Menninger Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, 1977 Butler Blvd., Suite 400, Houston, TX, 77030, USA.
3
University of South Florida, Tampa, FL, USA.
4
Division of Child and Adolescent Psychiatry, University of Arkansas for Medical Sciences, Arkansas, USA.
5
Developmental and Behavioral Pediatrics, Mayo Clinic, Rochester, MN, USA.
6
Department of Psychology, University of Miami, Miami, FL, USA.
7
Departments of Education and Psychiatry, University of California, Los Angeles, CA, USA.
8
Menninger Department of Psychiatry and Behavioral Sciences, Baylor College of Medicine, 1977 Butler Blvd., Suite 400, Houston, TX, 77030, USA. eric.storch@bcm.edu.

Abstract

Given the high rates of comorbid anxiety and autism spectrum disorder (ASD) in the adolescent and young adult population, effective treatment protocols to address anxiety symptoms are of importance to help promote greater independence across settings. While research supports the use of cognitive-behavioral therapy (CBT) across younger age groups with ASD, the literature is limited on interventions benefitting adolescents and young adults with comorbid anxiety disorders and ASD. Therefore, this open trial utilized a modified CBT manual for seven participants between the ages of 16 and 20 years, consisting of a 16-week modularized CBT treatment, including psychoeducation, cognitive therapy, and exposure therapy. Measures of anxiety and depression were completed at baseline and post-treatment. Findings demonstrated significant reductions on clinician-rated measures of anxiety. While findings are encouraging, additional studies examining the efficacy of CBT for this population with ASD and clinical anxiety are necessary to further identify beneficial treatment components.
PMID:29855820
DOI:10.1007/s10578-018-0817-5