Aperçu: G.M.
Cette étude transversale a examiné le poids de la dépression et de la qualité de vie chez les mères d'enfants avec un diagnostic de trouble du spectre de l'autisme (dTSA) fréquentant six écoles offrant des services éducatifs spéciaux aux enfants avec un dTSA en milieu urbain à Dhaka, au Bangladesh.
Toutes les mères consentantes étaient âgées de 18 ans et plus et répondaient aux critères du trouble dépressif majeur (TDM) lors de l'entretien structuré pour la version de recherche du DSM-V-TR - version non-patient administrée par des évaluateurs formés. La qualité de vie a été évaluée par le questionnaire normalisé à cinq dimensions EuroQol.
Le TDM a été diagnostiqué chez 45% des mères et était proportionnellement plus élevé chez celles qui ne travaillaient pas à l'extérieur de la maison, ne bénéficiaient d'aucun soutien en matière de garde d'enfants, exprimaient leur faible niveau de satisfaction quant à la qualité des prestataires lorsqu'elles avaient pris soin de leurs enfants avec un dTSA, et a déclaré avoir été victime d'attitudes négatives de la part de voisins envers leurs enfants avec un dTSA. La qualité de vie était négativement associée au TDM, à la maladie de la mère et au faible niveau de satisfaction à l’égard des fournisseurs de soins de santé pour les enfants avec un dTSA, ainsi qu’au comportement négatif des voisins à l’égard de leurs enfants. La qualité de vie était positivement associée au revenu mensuel familial déclaré et à l'amélioration des enfants avec un dTSA qui fréquentaient l'école. La prévalence du TDM chez les mères d'enfants avec un dTSA était élevée et associée à une qualité de vie médiocre.
L'intégration des services de santé mentale et de soutien pour les mères dans la prise en charge des enfants avec dTSA est susceptible de réduire le poids de la dépression auquel elles sont confrontées et d'améliorer leur qualité de vie globale.
Autism Res. 2019 Oct 24. doi: 10.1002/aur.2227.
Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh
Naheed A1, Islam MS1, Hossain SW2, Ahmed HU3, Uddin MMJ4, Tofail F5, Hamadani JD6, Hussain AHME7, Munir K8,9.
Author information
- 1
- Initiative for Non-Communicable Diseases, Health Systems and Population Studies Division, International Centre for Diarrhoeal Disease Research, Bangladesh (icddr,b), Dhaka, Bangladesh.
- 2
- Shuchona Foundation, Bangabandhu Memorial Trust Building, Dhaka, Bangladesh.
- 3
- National Institute of Mental Health, Bangladesh (NIMH,B), Sher-E-Bangla Nagar, Dhaka, Bangladesh.
- 4
- National Institute of Neurosciences & Hospital, Bangladesh (NINS,B), Sher-E-Bangla Nagar, Dhaka, Bangladesh.
- 5
- NCSD Administration, Nutrition and Clinical Services Division, International Centre for Diarrhoeal Disease Research, Bangladesh (icddr,b), Dhaka, Bangladesh.
- 6
- Maternal and Neonatal Health, Maternal and Child Health Division, International Centre for Diarrhoeal Disease Research, Bangladesh (icddr,b), Dhaka, Bangladesh.
- 7
- Planning and Development, Director General of Health Services (DGHS), Dhaka, Bangladesh.
- 8
- Division of Developmental Medicine, Boston Children's Hospital and Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, USA.
- 9
- Division of Developmental Medicine, Boston Children's Hospital and Department and Psychiatry, Harvard Medical School, Boston, Massachusetts, USA.
Abstract
This cross-sectional study examined the burden of depression and quality of life (QoL) among mothers of children with autism spectrum disorder
(ASD) attending six schools offering special educational services for
children with ASD in urban Dhaka, Bangladesh. All consenting mothers
were 18 years of age and older and met criteria for major depressive disorder
(MDD) on the Structured Interview for DSM-V-TR Research Version-non
patient edition administered by trained raters. QoL was assessed by the
EuroQol five-dimensional standardized questionnaire. MDD was diagnosed
in 45% of mothers and was proportionally higher among those who did not
work outside the home, had no childcare support at home, expressed low
level of satisfaction with the quality of providers when they had sought
care for their children with ASD, and reported being recipient of
negative attitudes from neighbors toward their children with ASD. QoL
was negatively associated with MDD, mothers' illness, and low
satisfaction with the health care providers for children with ASD, as
well as experiencing a negative attitude by neighbors toward their
children. QoL was positively associated with the reported family monthly
income and improvement of the children with ASD on school attendance.
The prevalence of MDD among mothers of children with ASD was high and
associated with poor QoL. Integrating mental health services and
supports for mothers in the ASD care of children is likely to address
the high burden of depression they face, and improve their overall
quality of life. Autism Res 2019. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: The levels of depression were assessed among mothers of children with autism spectrum disorder
(ASD) attending six schools offering special educational services for
children with ASD in urban Dhaka, Bangladesh. Almost one in two mothers
was found to have major depression. The quality of life of these mothers
was generally poor. Integrating mental health services for mothers with
ASD care in children is likely to address the burden of depression
among the mothers of children with ASD and improve overall quality of
life.
© 2019 International Society for Autism Research, Wiley Periodicals, Inc.
- PMID:31647184
- DOI: 10.1002/aur.2227
