Pleine conscience et stress chez les parents d'enfants avec un diagnostic de "troubles du spectre de l'autisme" en Chine

Aperçu: G.M.

Être parent d'un enfant atteint d'un trouble du spectre autistique (TSA) peut être extrêmement difficile. Il est important d'identifier les facteurs associés au stress parental. 

Cette étude a examiné l'effet indirect de la pleine conscience dispositionnelle des parents sur leur anxiété et leurs symptômes dépressifs et la qualité de vie de la famille (FQOL) par le biais de la parentalité consciente, puis du stress parental. 

Soixante-dix-neuf parents chinois (24,1% de pères) d'enfants avec un dTSA âgés de 3 à 13 ans ont rempli des questionnaires d'auto-évaluation. 

Les résultats ont indiqué qu'une plus grande vigilance dispositionnelle était associée à une plus grande vigilance parentale, qui était liée à un stress parental plus faible, et en outre liée à une moindre anxiété et des symptômes dépressifs et à une FQOL plus élevée. 

Les résultats fournissent des informations précieuses sur les voies potentielles par lesquelles la pleine conscience et la parentalité consciente peuvent avoir un impact positif sur le bilan des parents.

. 2021 May 29.  doi: 10.1007/s10803-021-05011-x. 

Mindfulness and Stress Among Parents of Children with Autism Spectrum Disorder in China

Hui Wang  ¹ , Qiandong Wang  ¹ , Xiaoyi Hu  ² , Zhuo Rachel Han  ¹

Affiliations

• PMID: 34050845
• DOI: 10.1007/s10803-021-05011-x

Abstract

Parenting a child with autism spectrum disorder (ASD) can be tremendously challenging. It is important to identify factors associated with parenting stress. This study examined the indirect effect of parental dispositional mindfulness on their anxiety and depressive symptoms and family quality of life (FQOL) through mindful parenting and then parenting stress. Seventy-nine Chinese parents (24.1% fathers) of children with ASD aged 3-13 years completed self-report questionnaires. Results indicated that higher dispositional mindfulness was associated with higher mindful parenting, which was related to lower parenting stress, and further related to lower anxiety and depressive symptoms and higher FQOL. The findings provide valuable insight into the potential pathways through which general mindfulness and mindful parenting may positively impact parental outcomes.

Keywords: Autism spectrum disorder; Dispositional mindfulness; Family quality of life; Mental health; Mindful parenting; Parenting stress.

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Efficacité de deux méthodes d'éducation à la santé sensorielle sur l'hygiène bucco-dentaire des adolescents avec un diagnostic de "troubles du spectre de l'autisme" : une étude interventionnelle

Aperçu: G.M.

Objectif:
Cette étude a été entreprise dans le but d'évaluer l'efficacité de deux interventions sensorielles à savoir - Pédagogie visuelle et application mobile (Brush Up) sur l'éducation à la santé bucco-dentaire dans la promotion de l'état de santé bucco-dentaire chez les adolescents de 13 à 17 ans avec un diagnostic de "trouble du spectre de l'autisme" (dTSA) dans la ville de Chennai. 

Méthodologie:
Une étude interventionnelle parallèle composée d'adolescents de 13 à 17 ans scolarisés avec un dTSA dans la ville de Chennai. L'indice de plaque (Sillness et Loe, 1964) et l'indice gingival (Loe et Sillness, 1963) ont été évalués au départ, après la 6e semaine et après la 12e semaine. 

Résultats:
Une différence significative dans la plaque (p = <0,001) et les scores gingivaux (p = <0,001) a été observée entre les groupes après 6 et 12 semaines après l'intervention. Il n'y avait aucune différence statistiquement significative dans la plaque dentaire (p = 0,912, 1,023, 0,812) et les scores gingivaux (p = 0,932, 0,264, 0,283) entre les groupes à tous les délais. 

Conclusion:
Dans la présente étude, nous avons constaté que les cartes visuelles et l'application mobile (Brush Up) avaient considérablement réduit la plaque dentaire et les scores gingivaux; par conséquent, les deux modalités peuvent être utilisées comme un outil efficace pour éduquer ces enfants et améliorer ainsi leur hygiène bucco-dentaire.

. 2021 May 29.  doi: 10.1111/scd.12606. 

Effectiveness of two sensory-based health education methods on oral hygiene of adolescent with autism spectrum disorders: An interventional study

Lakshmi Krishnan  ¹ , Kiran Iyer  ² , Parangimalai Divakar Madan Kumar  ³

Affiliations

• PMID: 34050975
• DOI: 10.1111/scd.12606

Abstract

Aim: This study was undertaken with an aim to evaluate the effectiveness of two sensory-based interventions namely - Visual pedagogy and Mobile based application (Brush Up) on oral health education in promoting oral health status among 13-17 year old school going adolescents with Autism Spectrum Disorder (ASD) in Chennai city.

Methodology: An interventional parallel arm study consisting of 13- to 17-year-old school going adolescent with ASD in Chennai city. Plaque Index (Sillness and Loe, 1964) and gingival index (Loe and Sillness, 1963) were assessed at baseline, 6th week and after 12th week.

Results: A significant difference in plaque (p = < 0.001) and gingival scores (p = < 0.001) were seen among the groups after 6 and 12 weeks post-intervention. There was no statistically significant difference in dental plaque (p = 0.912, 1.023, 0.812) and gingival scores (p = 0.932, 0.264, 0.283) between the groups at all the timelines.

Conclusion: In this present study we found that both the visual cards and mobile based application (Brush Up) had significantly reduced the dental plaque and gingival scores; hence both the modalities can be used as an effective tool in educating these children and thus improve their oral hygiene.

Keywords: autism spectrum disorder; mobile applications; oral health; visual aid.

© 2021 Special Care Dentistry Association and Wiley Periodicals LLC.

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Une dialectique de contrôle et d'acceptation: les repas avec des enfants autistes

Aperçu: G.M.

Les repas en famille partagés ont des implications importantes pour la santé et le bien-être des enfants, cependant, les heures de repas avec des enfants autistes sont souvent caractérisées par du stress et des comportements problématiques.
Une meilleure compréhension des processus sous-jacents peut élucider le défi des repas auxquels font face les familles avec enfants autistes ainsi que la façon dont les familles surmontent ces défis afin de promouvoir la santé et le bien-être de la famille.
Grâce à une analyse théorique fondée des observations sur les repas, des entretiens avec des parents et des entretiens avec des enfants avec 16 familles aux États-Unis, nous avons identifié une théorie de A Dialectic of Control and Acceptance. 

Les parents doivent exprimer leur amour par le contrôle et l'acceptation, mais ces processus parallèles sont en tension les uns avec les autres. La façon dont les parents négocient cette tension détermine dans quelle mesure leurs attentes sont bien alignées sur les forces et les défis de leurs enfants et sont en mesure de fournir un soutien efficace.

. 2021 May 26;105327.  doi: 10.1016/j.appet.2021.105327. 

A dialectic of control and acceptance: Mealtimes with children on the autism spectrum

S L Curtiss  ¹ , A T Ebata  ²

Affiliations

• PMID: 34051277
• DOI: 10.1016/j.appet.2021.105327

Abstract

Shared family meals have important implications for child health and wellbeing, however, mealtimes with children on the autism spectrum are often characterized by stress and problematic behavior. A better understanding of the underlying processes can elucidate the mealtimes challenges that families with children on the spectrum face as well as how families overcome those challenges in order to promote family health and wellbeing. Through a grounded theory analysis of mealtime observations, parent interviews, and child interviews with 16 families in the United States, we identified a theory of A Dialectic of Control and Acceptance. Integral to the role of mealtimes is for parents to express love through control and acceptance, however, these parallel processes are in tension with one another. How parents negotiate this tension dictates the degree to which their expectations are well aligned with their children's strengths and challenges and are able to provide effective support.

Keywords: Autism; Family meals; Family processes; Family rituals; Grounded theory.