31 mai 2021

Pleine conscience et stress chez les parents d'enfants avec un diagnostic de "troubles du spectre de l'autisme" en Chine

Aperçu: G.M.

Être parent d'un enfant atteint d'un trouble du spectre autistique (TSA) peut être extrêmement difficile. Il est important d'identifier les facteurs associés au stress parental. 

Cette étude a examiné l'effet indirect de la pleine conscience dispositionnelle des parents sur leur anxiété et leurs symptômes dépressifs et la qualité de vie de la famille (FQOL) par le biais de la parentalité consciente, puis du stress parental. 

Soixante-dix-neuf parents chinois (24,1% de pères) d'enfants avec un dTSA âgés de 3 à 13 ans ont rempli des questionnaires d'auto-évaluation. 

Les résultats ont indiqué qu'une plus grande vigilance dispositionnelle était associée à une plus grande vigilance parentale, qui était liée à un stress parental plus faible, et en outre liée à une moindre anxiété et des symptômes dépressifs et à une FQOL plus élevée. 

Les résultats fournissent des informations précieuses sur les voies potentielles par lesquelles la pleine conscience et la parentalité consciente peuvent avoir un impact positif sur le bilan des parents.

. 2021 May 29.  doi: 10.1007/s10803-021-05011-x. 

Mindfulness and Stress Among Parents of Children with Autism Spectrum Disorder in China

Hui Wang  1 , Qiandong Wang  1 , Xiaoyi Hu  2 , Zhuo Rachel Han  1
Affiliations

Abstract

Parenting a child with autism spectrum disorder (ASD) can be tremendously challenging. It is important to identify factors associated with parenting stress. This study examined the indirect effect of parental dispositional mindfulness on their anxiety and depressive symptoms and family quality of life (FQOL) through mindful parenting and then parenting stress. Seventy-nine Chinese parents (24.1% fathers) of children with ASD aged 3-13 years completed self-report questionnaires. Results indicated that higher dispositional mindfulness was associated with higher mindful parenting, which was related to lower parenting stress, and further related to lower anxiety and depressive symptoms and higher FQOL. The findings provide valuable insight into the potential pathways through which general mindfulness and mindful parenting may positively impact parental outcomes.

Keywords: Autism spectrum disorder; Dispositional mindfulness; Family quality of life; Mental health; Mindful parenting; Parenting stress.

References

    1. Abidin, R. R. (1995). Manual for the parenting stress index. Psychological Assessment Resources.
    1. Agazzi, H., Tan, S. Y., Ogg, J., Armstrong, K., & Kirby, R. S. (2017). Does parent-child interaction therapy reduce maternal stress, anxiety, and depression among mothers of children with autism spectrum disorder? Child & Family Behavior Therapy, 39(4), 283–303 - DOI
    1. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders. (5th ed.). American Psychiatric Press. - DOI
    1. Ang, K. Q. P., & Loh, P. R. (2019). Mental health and coping in parents of children with autism spectrum disorder (ASD) in Singapore: An examination of gender role in caring. Journal of Autism and Developmental Disorders, 49(5), 2129–2145 - PubMed - DOI
    1. Baer, R. A., Smith, G. T., Hopkins, J., Krietemeyer, J., & Toney, L. (2006). Using self-report assessment methods to explore facets of mindfulness. Assessment, 13(1), 27–45 - DOI
    1. Beer, M., Ward, L., & Moar, K. (2013). The relationship between mindful parenting and distress in parents of children with an autism spectrum disorder. Mindfulness, 4(2), 102–112 - DOI
    1. Bögels, S. M., Lehtonen, A., & Restifo, K. (2010). Mindful parenting in mental health care. Mindfulness, 1(2), 107–120 - PubMed - PMC - DOI
    1. Bögels, S. M., Hellemans, J., van Deursen, S., Römer, M., & van der Meulen, R. (2014). Mindful parenting in mental health care: Effects on parental and child psychopathology, parental stress, parenting, coparenting, and marital functioning. Mindfulness, 5(5), 536–551 - DOI
    1. Bohadana, G., Morrissey, S., & Paynter, J. (2019). Self-compassion: A novel predictor of stress and quality of life in parents of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 49(10), 4039–4052 - PubMed - DOI
    1. Brown, K. W., & Ryan, R. M. (2003). The benefits of being present: Mindfulness and its role in psychological well-being. Journal of Personality and Social Psychology, 84(4), 822–848 - DOI
    1. Cachia, R. L., Anderson, A., & Moore, D. W. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: A systematic review. Journal of Child and Family Studies, 25(1), 1–14 - DOI
    1. Carmody, J., & Baer, R. A. (2008). Relationships between mindfulness practice and levels of mindfulness, medical and psychological symptoms and well-being in a mindfulness-based stress reduction program. Journal of Behavioral Medicine, 31(1), 23–33 - PubMed - DOI
    1. Cheung, R. Y., Leung, S. S., & Mak, W. W. (2019). Role of mindful parenting, affiliate stigma, and parents’ well-being in the behavioral adjustment of children with autism spectrum disorder: Testing parenting stress as a mediator. Mindfulness, 10(11), 2352–2362 - DOI
    1. China Association of Persons with Psychiatric Disability and Their Relatives. (2014). Family needs of families with children with autism. Huaxia Publishing.
    1. China Bureau of Statistics. (2019). Household report of urban Chinese families. Retrieved December 10, 2020, from http://data.stats.gov.cn/ .
    1. Chiu, C. Y., Turnbull, A. P., & Summers, J. A. (2013). What families need: Validation of the family needs assessment for Taiwanese families of children with intellectual disability and developmental delay. Research and Practice for Persons with Severe Disabilities, 38(4), 247–258 - DOI
    1. Chuang, I. C., Tseng, M. H., Lu, L., Shieh, J. Y., & Cermak, S. A. (2014). Predictors of the health-related quality of life in preschool children with Autism spectrum disorders. Research in Autism Spectrum Disorders, 8(9), 1062–1070 - DOI
    1. Clark, E., Zhou, Z., & Du, L. (2019). Autism in China: Progress and challenges in addressing the needs of children and families. International Journal of School & Educational Psychology, 7, 135–146 - DOI
    1. Coatsworth, J. D., Duncan, L. G., Greenberg, M. T., & Nix, R. L. (2010). Changing parent’s mindfulness, child management skills and relationship quality with their youth: Results from a randomized pilot intervention trial. Journal of Child and Family Studies, 19(2), 203–217 - PubMed - DOI
    1. Cohrs, A. C., & Leslie, D. L. (2017). Depression in parents of children diagnosed with autism spectrum disorder: A claims-based analysis. Journal of Autism and Developmental Disorders, 47(5), 1416–1422 - PubMed - DOI
    1. Conner, C. M., & White, S. W. (2014). Stress in mothers of children with autism: Trait mindfulness as a protective factor. Research in Autism Spectrum Disorders, 8(6), 617–624 - DOI
    1. Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and down syndrome. Journal of Intellectual Disability Research, 54, 266–280 - PubMed - DOI
    1. Dardas, L. A., & Ahmad, M. M. (2014). Predictors of quality of life for fathers and mothers of children with autistic disorder. Research in Developmental Disabilities, 35, 1326–1333 - PubMed - DOI
    1. de Bruin, E. I., Blom, R., Smit, F. M., van Steensel, F. J., & Bögels, S. M. (2015). MYmind: Mindfulness training for youngsters with autism spectrum disorders and their parents. Autism, 19(8), 906–914 - PubMed - DOI
    1. Deng, Y. Q., Liu, X. H., Rodriguez, M. A., & Xia, C. Y. (2011). The five facet mindfulness questionnaire: Psychometric properties of the Chinese version. Mindfulness, 2(2), 123–128 - DOI
    1. Duncan, L. G., Coatsworth, J. D., & Greenberg, M. T. (2009). A model of mindful parenting: Implications for parent–child relationships and prevention research. Clinical Child and Family Psychology Review, 12(3), 255–270 - PubMed - PMC - DOI
    1. Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375–387 - PubMed - DOI
    1. Ferraioli, S. J., & Harris, S. L. (2013). Comparative effects of mindfulness and skills-based parent training programs for parents of children with autism: Feasibility and preliminary outcome data. Mindfulness, 4(2), 89–101 - DOI
    1. Fernandes, D. V., Canavarro, M. C., & Moreira, H. (2020). The mediating role of parenting stress in the relationship between anxious and depressive symptomatology, mothers’ perception of infant temperament, and mindful parenting during the postpartum period. Mindfulness. https://doi.org/10.1007/s12671-020-01327-4 - DOI
    1. Fong, V. C., Gardiner, E., & Iarocci, G. (2020). Can a combination of mental health services and ADL therapies improve quality of life in families of children with autism spectrum disorder? Quality of Life Research, 29, 2161–2170 - PubMed - DOI
    1. Gardiner, E., & Iarocci, G. (2012). Unhappy (and happy) in their own way: A developmental psychopathology perspective on quality of life for families living with developmental disability with and without autism. Research in Developmental Disabilities, 33, 2177–2192 - PubMed - DOI
    1. Gardiner, E., & Iarocci, G. (2015). Family quality of life and ASD: The role of child adaptive functioning and behavior problems. Autism Research, 8(2), 199–213 - DOI
    1. Gouveia, M. J., Carona, C., Canavarro, M. C., & Moreira, H. (2016). Self-compassion and dispositional mindfulness are associated with parenting styles and parenting stress: The mediating role of mindful parenting. Mindfulness, 7(3), 700–712 - DOI
    1. Guthrie, W., Swineford, L. B., Nottke, C., & Wetherby, A. M. (2013). Early diagnosis of autism spectrum disorder: Stability and change in clinical diagnosis and symptom presentation. Journal of Child Psychology and Psychiatry, 54(5), 582–590 - PubMed - DOI
    1. Han, Z. R., Ahemaitijiang, N., Yan, J., Hu, X., Parent, J., Dale, C., DiMarzio, K., & Singh, N. N. (2019). Parent mindfulness, parenting, and child psychopathology in China. Mindfulness. https://doi.org/10.1007/s12671-019-01111-z - DOI
    1. Hartley, M., Dorstyn, D., & Due, C. (2019). Mindfulness for children and adults with autism spectrum disorder and their caregivers: A meta-analysis. Journal of Autism and Developmental Disorders, 49(10), 4306–4319 - PubMed - DOI
    1. Hayes, A. F. (2012). PROCESS: A versatile computational tool for observed variable mediation, moderation, and conditional process modeling. Retrieved December 10, 2020, from http://www.afhayes.com/public/process2012.pdf .
    1. Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 629–642 - PubMed - DOI - PMC
    1. Hoffman, L., Marquis, J., Poston, D., Summers, J. A., & Turnbull, A. (2006). Assessing family outcomes: Psychometric evaluation of the Beach Center Family Quality of Life Scale. Journal of Marriage and Family, 68, 1069–1083 - DOI
    1. Hu, X., Han, Z. R., Bai, L., & Gao, M. M. (2019). The mediating role of parenting stress in the relations between parental emotion regulation and parenting behaviors in Chinese families of children with autism spectrum disorders: A dyadic analysis. Journal of Autism and Developmental Disorders, 49(10), 3983–3998 - PubMed - PMC - DOI
    1. Jones, L., Hastings, R. P., Totsika, V., Keane, L., & Rhule, N. (2014). Child behavior problems and parental well-being in families of children with autism: The mediating role of mindfulness and acceptance. American Journal on Intellectual and Developmental Disabilities, 119(2), 171–185 - PubMed - DOI
    1. Jones, L., Totsika, V., Hastings, R. P., & Petalas, M. A. (2013). Gender differences when parenting children with autism spectrum disorders: A multilevel modeling approach. Journal of Autism and Developmental Disorders, 43(9), 2090–2098 - PubMed - DOI
    1. Kabat-Zinn, J. (1982). An outpatient program in behavioral medicine for chronic pain patients based on the practice of mindfulness meditation: Theoretical considerations and preliminary results. General Hospital Psychiatry, 4(1), 33–47 - PubMed - DOI
    1. Kabat-Zinn, J. (2003). Mindfulness-based interventions in context: Past, present, and future. Clinical Psychology: Science and Practice, 10, 144–156
    1. Kabat-Zinn, M., & Kabat-Zinn, J. (1997). Everyday blessings: The inner work of mindful parenting. Hyperion.
    1. Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15, 247–277 - PubMed - DOI
    1. Lai, W. W., Goh, T. J., Oei, T. P., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45, 2582–2593 - PubMed - DOI
    1. Lee, L. C., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147–1160 - PubMed - DOI
    1. Lichtlé, J., Downes, N., Engelberg, A., & Cappe, E. (2019). The effects of parent training programs on the quality of life and stress levels of parents raising a child with autism spectrum disorder: A systematic review of the literature. Review Journal of Autism and Developmental Disorders, 7, 242–262 - DOI
    1. Liu, X., Cao, H., Zhu, H., Zhang, H., Niu, K., Tang, N., ... & Zhang, L. (2021). Association of chronic diseases with depression, anxiety and stress in Chinese general population: The CHCN-BTH cohort study. Journal of Affective Disorders, 282, 1278–1287
    1. Lovibond, P. F., & Lovibond, S. H. (1995). The structure of negative emotional states: Comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behaviour Research and Therapy, 33(3), 335–343 - PubMed - DOI
    1. Lu, S., Hu, S., Guan, Y., Xiao, J., Cai, D., Gao, Z., ... & Margraf, J. (2018). Measurement invariance of the depression anxiety stress scales-21 across gender in a sample of Chinese university students. Frontiers in Psychology, 9, 2064
    1. Mak, W. W., & Chen, S. X. (2006). Face concern: Its role on stress–distress relationships among Chinese Americans. Personality and Individual Differences, 41(1), 143–153 - DOI
    1. Mak, W. W., & Kwok, Y. T. (2010). Internalization of stigma for parents of children with autism spectrum disorder in Hong Kong. Social Science & Medicine, 70(12), 2045–2051 - DOI
    1. McCaffrey, S., Reitman, D., & Black, R. (2017). Mindfulness in Parenting Questionnaire (MIPQ): Development and validation of a measure of mindful parenting. Mindfulness, 8(1), 232–246 - DOI
    1. McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stress and family quality of life in parents of children with autism spectrum disorder: Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44, 3101–3118 - PubMed - DOI
    1. Meppelink, R., de Bruin, E. I., Wanders-Mulder, F. H., Vennik, C. J., & Bögels, S. M. (2016). Mindful parenting training in child psychiatric settings: Heightened parental mindfulness reduces parents’ and children’s psychopathology. Mindfulness, 7(3), 680–689 - PubMed - PMC - DOI
    1. Moreira, H., & Canavarro, M. C. (2015). Individual and gender differences in mindful parenting: The role of attachment and caregiving representations. Personality and Individual Differences, 87, 13–19 - DOI
    1. Neece, C. L. (2014). Mindfulness-based stress reduction for parents of young children with developmental delays: Implications for parental mental health and child behavior problems. Journal of Applied Research in Intellectual Disabilities, 27(2), 174–186 - PubMed - DOI
    1. Oñate, L., & Calvete, E. (2019). The beneficial role of mindfulness facets in relatives of people with intellectual and developmental disabilities. Mindfulness, 10(9), 1883–1892 - DOI
    1. Parent, J., McKee, L. G., Anton, M., Gonzalez, M., Jones, D. J., & Forehand, R. (2016). Mindfulness in parenting and coparenting. Mindfulness, 7(2), 504–513 - PubMed - PMC - DOI
    1. Quaglia, J. T., Braun, S. E., Freeman, S. P., McDaniel, M. A., & Brown, K. W. (2016). Meta-analytic evidence for effects of mindfulness training on dimensions of self-reported dispositional mindfulness. Psychological Assessment, 28(7), 803–818 - PubMed - DOI
    1. Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609–1620 - PubMed - DOI
    1. Schiltz, H. K., McVey, A. J., Magnus, B., Dolan, B. K., Willar, K. S., Pleiss, S., Karst, J., Carson, A. M., Caiozzo, C., Vogt, E., & Van Hecke, A. V. (2018). Examining the links between challenging behaviors in youth with ASD and parental stress, mental health, and involvement: Applying an adaptation of the family stress model to families of youth with ASD. Journal of Autism and Developmental Disorders, 48(4), 1169–1180 - PubMed - DOI
    1. Singh, N. N., Lancioni, G. E., Winton, A. S., Singh, J., Curtis, W. J., Wahler, R. G., & McAleavey, K. M. (2007). Mindful parenting decreases aggression and increases social behavior in children with developmental disabilities. Behavior Modification, 31(6), 749–771 - PubMed - DOI
    1. Singh, N. N., Lancioni, G. E., Medvedev, O. N., Hwang, Y. S., & Myers, R. E. (2020). A component analysis of the mindfulness-based positive behavior support (MBPBS) program for mindful parenting by mothers of children with autism spectrum disorder. Mindfulness. https://doi.org/10.1007/s12671-020-01376-9 - DOI - PubMed - PMC
    1. Su, X., Cai, R. Y., & Uljarević, M. (2018). Predictors of mental health in Chinese parents of children with autism spectrum disorder (ASD). Journal of Autism and Developmental Disorders, 48, 1159–1168 - PubMed - DOI
    1. Sun, X., Allison, C., Wei, L., Matthews, F. E., Auyeung, B., Wu, Y. Y., Griffiths, S., Zhang, J., Baron-Cohen, S., & Brayne, C. (2019). Autism prevalence in China is comparable to Western prevalence. Molecular Autism, 10, 1–19 - DOI
    1. Tait, K., Fung, F., Hu, A., Sweller, N., & Wang, W. (2016). Understanding Hong Kong Chinese families’ experiences of an autism/ASD diagnosis. Journal of Autism and Developmental Disorders, 46, 1164–1183 - PubMed - DOI
    1. Tint, A., & Weiss, J. A. (2016). Family wellbeing of individuals with autism spectrum disorder: A scoping review. Autism, 20(3), 262–275 - PubMed - DOI
    1. Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., Berridge, D. M., & Vagenas, D. (2013). Is there a bidirectional relationship between maternal well-being and child behavior problems in autism spectrum disorders? Longitudinal analysis of a population-defined sample of young children. Autism Research, 6(3), 201–211 - PubMed - DOI
    1. Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49 - DOI
    1. Wang, K., Shi, H. S., Geng, F. L., Zou, L. Q., Tan, S. P., Wang, Y., Neumann, D. L., Shum, D. H., & Chan, R. C. (2016). Cross-cultural validation of the Depression Anxiety Stress Scale–21 in China. Psychological Assessment, 28(5), e88 - PubMed - DOI
    1. Wu, L., Buchanan, H., Zhao, Y., Wang, P., Zhan, Z., Zhao, B., & Fan, B. (2019). Translation and validation of a Chinese version of the Mindfulness in Parenting Questionnaire (MIPQ). Frontiers in Psychology, 10, 1847 - PubMed - PMC - DOI
    1. Yeh, C. H., Chen, M. L., Li, W., & Chuang, H. L. (2001). The Chinese version of the parenting stress index: A psychometric study. Acta Paediatrica, 90(12), 1470–1477 - PubMed - DOI
    1. Zeng, S., Hu, X., Zhao, H., & Stone-MacDonald, A. K. (2020). Examining the relationships of parental stress, family support and family quality of life: A structural equation modeling approach. Research in Developmental Disabilities, 96, 103523 - PubMed - DOI
    1. Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X., & Xu, S. (2010). Theorizing about family quality of life. In R. Kober (Ed.), Enhancing the quality of life of people with intellectual disabilities. (pp. 241–278). Springer. - DOI
Publié par à
Libellés : , ,

Aucun commentaire:

Enregistrer un commentaire

Inscription à : Publier les commentaires (Atom)