Obstacles aux services offerts pour les mères immigrantes d'enfants autistes au Canada

Aperçu: G.M.

ans cette étude qualitative, 21 mères immigrantes d'enfants atteints d'autisme, d'origine ethnoculturelle variée, ont été interviewées à Toronto, au Canada.  

e manque de soutien attendu des partenaires et les perceptions négatives des services ont été identifiés comme des défis émotionnels et perceptifs. Une attention particulière est nécessaire pour remédier aux inégalités dans le contexte des voies d'accès actuelles pour l'autisme. 

Int J Ment Health Addict. 2017;15(2):239-259. doi: 10.1007/s11469-017-9732-4. Epub 2017 Jan 17.

Access Barriers to Services by Immigrant Mothers of Children with Autism in Canada

Khanlou N¹, Haque N², Mustafa N¹, Vazquez LM¹, Mantini A³, Weiss J¹.

Author information

1

Women's Health Research Chair in Mental Health, Faculty of Health, School of Nursing, York University, HNES 3rd floor, 4700 Keele Street, Toronto, ON Canada M3J 1P3.

2

Critical Care Service Ontario, LuCliff Place, 700 Bay St, Suite 1400, Toronto, Canada.

3

Centre for Research on Inner City Health, Li Ka Shing Knowledge Institute, St. Michael's Hospital, 30 Bond Street, Toronto, ON M5B 1 W8 Canada.

Abstract

Equal access for autism services remains suboptimal for diverse groups. In Canada, little is known about the barriers immigrant mothers face accessing services and support for their children with developmental disabilities. In this qualitative study, 21 immigrant mothers of children with Autism, from a diverse ethno cultural background, were interviewed in Toronto, Canada. We apply House's (1981) four domains of social support to analyze findings. Structural support challenges, such as delays in diagnosis, fragmented and dispersed services were common, followed by instrumental challenges due to loss of social ties and stigma. Lack of expected support from partners, and negative perceptions of services, were identified as emotional and perceptive challenges. Focused attention is required to address inequalities within the context of current access pathways for autism.

PMID: 28424567

PMCID: PMC5378730

DOI: 10.1007/s11469-017-9732-4