Aperçu: G.M.
L'objectif de l'étude est de comparer les obstacles au diagnostic du "trouble du spectre de l'autisme" (TSA) et à l'utilisation actuelle des services liés aux TSA chez les familles non blanches (NLW) et les familles latino-américaines
ayant une maîtrise de l'anglais (L-EP) ou une compétence limitée en
anglais (L-LEP).
Dans
l'ensemble, les obstacles au diagnostic de la TSA étaient fréquents:
les familles (n = 352) ont connu une moyenne de 8 des 15 barrières au
diagnostic des TSA. Les
barrières les plus répandues dans l'ensemble étaient le «stress du
processus de diagnostic», «les connaissances des parents sur les TSA» et
«la compréhension du système médical». Par
rapport aux familles NLW, les familles L-LEP étaient plus susceptibles
d'avoir des obstacles liés aux connaissances sur les TSA et à la confiance envers les prestataires. Les
enfants des familles L-LEP ont également eu moins d'heures
thérapeutiques actuelles et plus de besoins thérapeutiques non
satisfaits que les enfants des familles NLW.
La
maîtrise de l'anglais était un marqueur important pour les obstacles au
diagnostic et au traitement des TSA chez les Latinos. L'augmentation des connaissances liées aux TSA et la confiance des
fournisseurs peuvent diminuer les disparités dans le diagnostic et le
traitement de la TSA chez les Latinos américains.
Pediatrics. 2017 May;139(5). pii: e20163010. doi: 10.1542/peds.2016-3010.
Disparities in Diagnosis and Treatment of Autism in Latino and Non-Latino White Families
Zuckerman KE1,2, Lindly OJ3,4, Reyes NM5, Chavez AE3, Macias K6,7, Smith KN6,7, Reynolds A5,8.
Author information
- 1
- Division of General Pediatrics, Oregon Health and Science University, Doernbecher Children's Hospital, Portland, Oregon; zuckerma@ohsu.edu
- 2
- Oregon Health and Science University-Portland State University School of Public Health, Portland, Oregon.
- 3
- Division of General Pediatrics, Oregon Health and Science University, Doernbecher Children's Hospital, Portland, Oregon.
- 4
- College of Public Health and Human Sciences, Oregon State University, Corvallis, Oregon.
- 5
- Departments of Pediatrics and.
- 6
- Department of Pediatrics, University of Southern California, Los Angeles Children's Hospital, Los Angeles, California.
- 7
- University Center for Excellence in Developmental Disabilities, University of Southern California, Los Angeles, California; and.
- 8
- Psychiatry, University of Colorado School of Medicine, Aurora, Colorado.
Abstract
OBJECTIVES:
To compare barriers to autism spectrum disorder (ASD) diagnosis and current ASD-related service use among non-Latino white (NLW) families and Latino families with English proficiency (L-EP) or limited English proficiency (L-LEP).METHODS:
We conducted a mixed-mode survey of families of children with confirmed ASD seen at specialty clinics in 3 United States cities. Bivariate and multivariate analyses compared barriers to ASD diagnosis, current service use, and unmet therapy need among NLW, L-EP, and L-LEP families.RESULTS:
Overall, barriers to ASD diagnosis were prevalent: families (n = 352) experienced a mean of 8 of 15 barriers to ASD diagnosis. The most prevalent barriers overall were "stress of diagnostic process," "parent knowledge about ASD," and "understanding medical system." Compared with NLW families, L-LEP families were more likely to experience barriers related to knowledge about ASD and trust in providers. Children in L-LEP families also had fewer current therapy hours and more unmet therapy needs than children in NLW families. L-EP families' barriers and treatment services use profile was more similar to NLW than to L-LEP families.CONCLUSIONS:
English proficiency was an important marker for barriers to ASD diagnosis and treatment in Latinos. Increasing ASD-related knowledge and provider trust may decrease disparities in the diagnosis and treatment of ASD among US Latinos.
Copyright © 2017 by the American Academy of Pediatrics.
- PMID: 28557734
- PMCID: PMC5404727 [Available on 2018-05-01]
- DOI: 10.1542/peds.2016-3010
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